My lyme beginning continued...

So in July of 09 I was FINALLY admitted to the hospital in total agony and feeling like well...not good. The drs. who were treating me in the hospital were treating me for a terrible migraine, but didn't have much thoughts about all the other "stuff" going on-Fibromyalgia was tossed out there, but I knew it wasn't that. But they were so good and vigialant it was just that not one of us thought to recheck lyme as my previous dr. was ADAMANT that I didn't have lyme.

My skin hurt to the touch. I had a sharp stabbing constant pain in my left shoulder blade that kept me from any kind of rest. My headache was so severe i could barely hold my head up or keep my eyes open because of the light sensitivity. My neck hurt and was stiff. Narcotics did not take away my pain, nor even offer me some medicated sleep. A few days in the hospital and I developed severe right flank pain-thinking it was a kidney stone they took me for a CT, nothing found. I spent my nights alone in tears from the pain and lack of sleep. I actually begged God to make it stop, I didn't know how much longer I could hold on.

I was taken for a nerve block in my neck which did relieve the head issues some what but all else persisted. My experiences during this time were dragging me down physically and mentally and I didn't know how much more I could take. I wondered how people with severe chronic pain managed day to day, because I was NOT doing very well.

They finally placed a fentanyl patch on the pain in my back/neck area-all that did was make me extremely nauseous-I couldn't eat for days.

Finally after nine days, I asked to go home. Even though there wasn't any diagnosis or resolution, I think I just wanted to go home and give up. Still in pain and still trying to cope and find answers....

Almost one week later I developed a right sided facial palsy. Called my neurologist, and after I asked if he thought I was having a stroke (which I really didn't think I was), he said I needed to go to the ER. Great back there again! But this time... I INSISTED they run a Lyme test, can you believe they didn't want to initially? They gave me a 7 day course of antibiotics. I had to return to the ER as I had an adverse reaction to the original prescription. But mind you...only 7 days and all my problems would go away????

Well I kept calling the hospital lab for my results and finally 4 days later..test in...Lyme Disease off the charts
My Lyme Screen was >5.oo High
Out of the 15 bands tested I was non-reactive for three. All other bands were reactive or positive. Imagine?

Within a few days of starting the antibiotics, the palsy left (altho my right eye is still blurry) and my severe pain and other symptoms began to lessen (Imagine the immediate changes all from just a little old antibiotic? )Gee if only I had been given a course of antibiotics back in the beginning when I asked my then GP, perhaps it all wouldn't have gotten so far!?!

So my new dr agreed to prescribe antibiotics and as thirty days came and went, the symptoms returned, so we eventuall went with a ninety day course of antibiotics. I finally began to feel huma again AND I slept like a baby-no pain, no muscle twitches, no cramping, nothing.

So I began to heal....but then...IT"S BAAAAAACK!